The international Care-for-Rare Alliance is a network of renowned doctors, scientists, researchers, and clinicians committed to helping children with rare diseases through translational and interdisciplinary collaboration.
Global cooperation is critical to curing rare diseases. While the incidence of specific genetic mutations and diseases may be extremely low in one country or population, occurrences worldwide allow for more robust study, understanding of, and development of treatments for rare disease patients. The wider our geographic reach and the stronger our ties to global partners are, the more we can share data effectively, understand disease mechanisms, and work toward treatments and cures for patients worldwide.
We support increased research on inborn errors of immunity (IEI), which may present with severe or recurrent infections, known as primary immunodeficiency diseases (PID). With robust and growing partnerships in the Middle East, Northern Africa, Southeast Asia, and South America, many Alliance partners also focus their research collaborations on rare diseases of the blood, bone marrow, and the immune system. One of the most successful initiatives of the Alliance is the VEOIBD Consortium.