Our Initiatives

Advancing Rare Pediatric Disease Research

We are dedicated to finding treatments and cures for rare pediatric diseases.  As our work is typically focused on the rarest of rare diseases, global collaboration is essential to our success.  Our current initiatives are focused on: 


Care-for-Rare is committed to helping children and their families with rare diseases by:

doctor looking through microscope

Advancing science in national and global interdisciplinary alliances

doctors listening at a conference

Supporting education of physicians and scientists

group of doctors at patient bedside

Raising awareness in professional and local communities

child playing bongos with therapist

Granting children access to cutting-edge diagnostics and therapy