After discovering the first patients with a defect in the interleukin-10 receptor over ten years ago, the Care-for-Rare Foundation started helping children with severe inflammatory bowel disease worldwide. Together with renowned doctors and scientists in the USA, Canada, Great Britain and Austria, the foundation offers a platform for elucidating the causes of the disease and the development of new therapy methods: The VEOIBD Consortium. One of Care-for-Rare’s most successful global Alliance networks, the mission of the consortium is to illuminate all underlying genetic defects in children suffering from VEOIBD and, based on these findings, to research and apply urgently needed therapies.
Since 2013, this ambitious global project has been financially supported by the Leona M. and Harry B. Helmsley Charitable Trust New York, and the National Institutes of Health (NIH), among others. The coordinating centers of the Care-for-Rare VEOIBD Alliance are the Boston Children’s Hospital, Harvard Medical School, the Dr. von Hauner Children’s Hospital, LMU Munich, and the Hospital for Sick Children, Toronto. In addition, the universities of Stanford, Yale, Los Angeles, Oxford, Vienna, Jerusalem, and Utrecht are integrated into the network.
This video highlights accomplishments of the VEOIBD consortium, as well as Care-for-Rare’s thematic networks centered around rare diseases and personalized medicine. We invite you to learn more on our Alliance webpage.